TWO brave little girls are putting aside their own complex conditions to bring a smile to the faces of other children.
Heidi Rogerson and Evie Davies are planning a five-mile walk and wheelchair trek for the charity Miles of Smiles on April 23.
Heidi, nine, from Garden City has Ehlers-Danlos syndrome, a collagen condition that causes her severe pain and all her joints to dislocate.
She also has a rare chromosome disorder, cerebral palsy, Beals syndrome, developmental dysplasia of the hip and an autistic spectrum disorder.
Ysgol Pen Coch headteacher Ange Anderson, Linda Davies, Allison Rogerson, Carl Sargeant, Martin Rogerson and front row, Evie Davies and Heidi Rogerson
Heidi has to go to Alder Hey children’s hospital in Liverpool every six months where she is under the orthopaedic team. Since she was just six months old she has undergone various major operations, the most recent being nine hours of reconstruction work on her pelvis – which also included having both legs broken for the second time.
Alyn and Deeside Assembly Member Carl Sergeant is helping Heidi’s family to provide her with a power wheelchair when they move into a specially adapted bungalow.
Heidi enjoys horse riding with the Riding for the Disabled Association and has previously raised money for them, as well as the neuroblastoma cancer charity.
“She likes helping other kids and there’s no stopping her doing anything,” her dad Martin said.
“We’ve had good support from Miles of Smiles and want to help them send disabled and life-limited children to Disneyland Paris for the 25th anniversary celebrations.”
Heidi will be joined on the day by her friend Evie Davies, a fellow pupil at Ysgol Pen Coch in Flint. Seven-year-old Evie, from Treuddyn, has the severe epileptic condition West syndrome, cerebral palsy, severe development delays and is fed through a peg in her stomach.
She has scoliosis of the spine, has recently had double hip surgery and will find out soon whether she also has peho syndrome. Evie is non-verbal and communicates in other ways.
She has had great success using eye-gaze technology which she has used at Ysgol Pen Coch and at respite centre Ty Gobaith in Conwy.
Her mum Linda, who will be pushing her on the day, would eventually like to fundraise for Evie to have this technology at home.
Mr Sargeant said: “It was so inspiring to meet Heidi and Evie and their parents today. Despite their own complex conditions they want to help other people – they are such kid-hearted little girls.
“Their parents are amazing, finding time to fundraise on top of the wonderful care they give their daughters. It was quite humbling to meet them and I hope I can help them reach their fundraising target.”
Heidi and Evie’s fundraising event is on Sunday, April 23 at 12pm from the Queensferry Hotel Garden City. People who would like to support them are welcome to join in.
Each girl and her family want to raise £500 each for Miles of Smiles.
Mr Sargeant has been tweeting local companies and sponsorship has already gone up since sharing the story on his Facebook and Twitter feeds.
To sponsor Heidi or Evie, visit https://www.justgiving.com/fundraising/Heidi-Rogerson (Heidi) https://www.justgiving.com/fundraising/Lindadavies73 (Evie)
See full story in the Leader