Wrexham girl with Rett syndrome dreams of meeting One Direction

Reporter:

Staff reporter (Leader Live)

A YOUNG girl with a debilitating medical condition hopes to meet her favourite band.

Five-year-old Georgia Edwards, who suffers from Rett syndrome and is now battling epilepsy as well, dreams of meeting One Direction.

Fans worldwide were left heartbroken earlier this week when the group announced they would take a year-long hiatus, though they stressed they were not splitting up permanently.

But now Georgia’s mum and dad Katie and Gavin have launched a social media campaign in the hope their daughter will get to meet the group before they take a break.

They hope people will share their appeal on Facebook and Twitter widely enough for it to be picked up by someone with connections to the group.

Mrs Edwards said: “Georgia is wheelchair-bound, requires a feeding tube and her only form of communication is with her eyes. 

“Georgia also suffers from epilepsy and dystonia. Her physical abilities and health have deteriorated dramatically over the past 12 months.

“One of the only things that gets Georgia through the toughest times, and her biggest passion is music, in particular One Direction.

“Therefore with the recent announcement of their split next year we thought it worth a try starting a Facebook and Twitter campaign to see if we could make her dreams come true of meeting One Direction.

“Tweet it, share it. Whatever gets the word out then we would be eternally grateful.”

During the last 18 months Rett syndrome has cost Georgia, from Heol Offa in Johnstown, the ability to walk, communicate clearly and use her hands.

She is now suffering from seizures and is having to take even more medication to try to bring them under control.

Georgia’s parents Katie, 28, and Gavin, 31, and brother Charlie, seven, have rallied round to stay positive following this latest twist to Georgia’s health.

For more information and to help the campaign, go to https://www.facebook.com/groups/944056355653494 or https://twitter.com/GeorgiePies_bf

See full story in the Leader

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