Ball takes Harley’s fund closer to target

Reporter:

Matt Jones

A COUPLE have taken another step towards giving their young son a new lease of life.

Four-year-old Harley Noble suffers from schizencephaly, a rare form of cerebral palsy which has left him confined to a wheelchair.

Parents Christina Lace and Jonathan are raising money to help build a specially adapted bedroom and wetroom at their home on Cadnant Drive, Bagillt.

On Friday another £450 was raised towards the Harley Fund with a masquerade fundraising ball at Flint’s Mountain Park Hotel.

Christina said: “The night went really well. We had a juggler, circus performers and stilt walkers as well as a DJ.

“It was an enjoyable evening all round. I’d like to thank the Mountain Park Hotel, Carla Barclay and a big thank you to DJ Jamie Oliver.”

It is expected to cost up to £20,000 to renovate the family home and give Harley the chance to have his own room and so far more than £6,000 has been raised.

Christina said: “It will just change our day-to-day lives and make life so much easier.

“It will give Harley a new lease of life to give him his own bedroom.

“It will give him the life of a normal four-year-old boy.

“At the moment he shares with his two-year old sister, Lilly, so it will give him more independence.

“We are edging towards it slowly, but we just have to keep on.”

Last week Harley’s parents acquired a specially adapted Volkswagen Caddy Maxi to help Harley travel in his motorised wheelchair.

He can now take it to Cornist Park CP School to play with his friends.

See full story in the Leader

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