A COUPLE have taken another step towards giving their young son a new lease of life.
Four-year-old Harley Noble suffers from schizencephaly, a rare form of cerebral palsy which has left him confined to a wheelchair.
Parents Christina Lace and Jonathan are raising money to help build a specially adapted bedroom and wetroom at their home on Cadnant Drive, Bagillt.
On Friday another £450 was raised towards the Harley Fund with a masquerade fundraising ball at Flint’s Mountain Park Hotel.
Christina said: “The night went really well. We had a juggler, circus performers and stilt walkers as well as a DJ.
“It was an enjoyable evening all round. I’d like to thank the Mountain Park Hotel, Carla Barclay and a big thank you to DJ Jamie Oliver.”
It is expected to cost up to £20,000 to renovate the family home and give Harley the chance to have his own room and so far more than £6,000 has been raised.
Christina said: “It will just change our day-to-day lives and make life so much easier.
“It will give Harley a new lease of life to give him his own bedroom.
“It will give him the life of a normal four-year-old boy.
“At the moment he shares with his two-year old sister, Lilly, so it will give him more independence.
“We are edging towards it slowly, but we just have to keep on.”
Last week Harley’s parents acquired a specially adapted Volkswagen Caddy Maxi to help Harley travel in his motorised wheelchair.
He can now take it to Cornist Park CP School to play with his friends.
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