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Caia Park baby hailed for her fighting spirit

Published date: 10 June 2014 |
Published by: Rory Sheehan
Read more articles by Rory Sheehan


 

A BABY girl who was unable to breathe for the first seven minutes of her life has been hailed as “a little fighter” by her mother.

Amy Trow, 21, has spoken of the terrifying moment her first child Dakota was resuscitated after she was born seven months ago.

It took the tiny baby seven-and-a-half minutes to take her first breath.

Miss Trow and her partner Daniel Roberts, 27, of Pentre Gwyn, Caia Park, gave birth to Dakota at Wrexham Maelor Hospital.

But their world was rocked when she was diagnosed with a serious epileptic condition.

After being resuscitated she was diagnosed with meningitis, which she survived, and with the epileptic condition infantile spasm seizures – known as West Syndrome – and cerebral palsy.

Miss Trow said: “We’ve been told only one in 250,000 babies are born with West Syndrome. She’s a miracle really, one of a kind. It was a massive shock and so scary when she wasn’t able to breathe, and then we were told about her condition – because before she was born everything was normal.

“She had too much fluid and low oxygen on her brain and has to go to Alder Hey Hospital in Liverpool for regular check-ups. It has been a really tough, rough ride but myself and Daniel have remained strong.

“We didn’t know we would get this far with her and treat every day as a bonus, but she’s doing well now.

“She’s a little fighter. Only one in 6,000 born with West’s Syndrome are able to walk and one in 10 will be wheelchair bound and unable to do many things. Dakota can make a babbling noise, but is not going to be able to walk, talk or learn like other children.

“She is not able to keep her head up without support and will need specialist equipment in the future to help her do that.”

Dakota’s condition has inspired Miss Trow to raise awareness and funds for the West Syndrome charity and children’s ward at the Maelor where she has also been treated.

She said: “The hospital have been brilliant and we’re really grateful.

“As well as all their medical help they put up with the crying and emotion from us. I want to raise awareness as people don’t really know about the condition.

“I also want to thank my friend Nia Blackwell for all her support.

“We will be starting fundraising with a funday at the Red Dragon pub in Caia Park on July 5, at 12pm. There will be a raffle to win cinema and bowling tickets, and all donations are welcome.

“Even just raising £50 would be better than nothing – a way of saying thank you for the care and treatment she has had.”

For more news from across the region visit newsnorthwales.co.uk

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