A FAMILY of a young epileptic who suffers up to 50 fits a day have renewed their plea for fundraising help to give him “to give him the care he deserves”.
More than £4,000 has been raised in the last four months in aid of seven-year-old Kyle Payne, who suffers with severe epilepsy.
His family hope to raise £25,000 for an extension on their home in Y Berthlog, Trelogan, and to buy much-needed medical equipment for Kyle.
The extension would provide Kyle with a room equipped with a hoist, an electronic bed, an oxygen supply and monitors.
If the family can raise the money, Flintshire Council has said it will give a further £36,000 towards the fund.
Kyle’s aunt, Rhiannon Robins of Mold, said the family is keen to keep the appeal in the public eye.
She said: “Kyle continues to have many seizures on a daily basis and requires oxygen regularly.
“He spends a lot of time in a wheelchair and P-pod (a specialist chair) as he’s too poorly to walk around.”
Mrs Robins said Kyle was recently admitted to Glan Clwyd Hospital with a life-threatening condition where the brain is in a state of persistent seizure.
“It turned out to be a prolonged seizure but there is concern over Kyle’s oxygen levels as they often drop in the night, setting off his medical alarms.
“During his stay in hospital, he had a series of tests which showed his oxygen levels continue to decrease and further investigation is needed.”
Kyle regularly attends Alder Hey Children’s Hospital in Liverpool and also receives respite care from Hope House Hospice.
He needs a cocktail of drugs every day to treat his condition and most days he is unable to walk and is no longer able to eat or drink, resulting in him being fed via a tube in his abdomen.
Kyle’s constant seizures have resulted brain damage and significant physical disabilities.
He has to sleep in a room which is completely unsuitable for his needs and his mum is forced to carry him up and down the stairs everyday – which the family say is “almost impossible and dangerous”.
Kyle’s parents Nicola and Darren Payne receive night care four nights a week from Diana community nursing team nurses.
Mrs Robins said the family will now step up its campaign to raise funds.
She added: “We’re very busy at the Kyle Payne Appeal with lots of fundraisers coming up and lots more in the pipeline.
“We’re very grateful for everyone’s support.”
The family has organised a bingo night at the Queens Head in Mold on Saturday from 7pm.
There will also be a quiz night with karaoke and disco on March 29 at the Afon Goch pub in Trelogan.
To donate, make a cheque out to the Kyle Payne Appeal and send it to 60 Y Berthlog, Trelogan, CH8 9BW.
Kyle has a Facebook group at www.facebook.com/ groups/kylepayneappeal and Kyle has a Twitter account with the handle @KylePayneAppeal.