Holywell mum hopes to help others like son Jac

Published date: 21 February 2014 |
Published by: Owen Evans 
Read more articles by Owen Evans  Email reporter


A MOTHER whose son has a rare genetic condition is creating a pop-up charity shop to help people like him.

Sian Owens, 41, is opening the Holywell store to raise money for Genes for the causes Jeans and Whizz-Kidz, which are close to her heart.

Her son Jac, 16, suffers from pseudoachondraplasia, a rare type of dwarfism which causes shortened limbs.

The family has held fundraising events for Genes for Jeans, a campaign raising money for Genetic Disorders UK. But this time they will also help Whizz-Kidz, which provides mobility equipment for disabled children.

With help from Whizz-Kidz and ITV show Text Santa, Jac – a pupil at Ysgol Maes Garmon, Mold – was given a high rise wheelchair last Christmas. Sian, of Strand Park, Holywell, said it has helped change his life.

She said: “If he wants to reach something off a high shelf then now he can.

“It has made a big difference as he is always going around Mold and he is more independent now. Opening the shop is a chance to give something back to them.”

The shop will be open on Holywell High Street from Monday until the following Saturday.

Sian, with husband Lee and friend Lesley Riordan, has collected items to be sold in the shop and hopes people will bring in more.

She said as well as raising money for the charities, she hopes to help raise awareness of her son’s rare condition.

She said: “He has limited growth and he’s got arthritis as well. It is just every day for him because he has known no different.

“He is happy, he always has a smile on his face, nothing phases him and he has a good group of friends.”

Last year, the family opened a pop-up shop in the same place, which helped them raise £1,764.50, and this time they are hoping they can raise even more.

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