THE family of a seven-year-old boy who suffers up to 50 fits a day are “over the moon” after raising thousands of pounds within weeks.
About £3,000 has been raised in five weeks in aid of Kyle Payne, who has suffered with severe epilepsy for the past four years.
His family are aiming to raise £25,000 to fund an extension and buy medical equipment in a bid to give Kyle “the care he deserves”.
If they can raise the money, Flintshire Council previously said it will provide a further £36,000 – but that’s dependant on Kyle’s family raising the rest of the money.
And the fund is bang on track, having raised about £3,000 in just over a month.
Kyle’s aunt Rhiannon Robins, of New Brighton, near Mold, said Kyle’s parents Nicola and Darren Payne were “desperate” to build the extension on their family home in Y Berthlog, Trelogan.
“In five weeks we have raised about £3,000,” she said.
“We are over the moon.
“We just can’t believe that in such a short space of time we have been able to raise that much money.
“It just gives us hope that we will be able to raise the total.”
She said that Kyle – who was in Glan Clwyd Hospital’s high dependency unit last month due to suffering with persistent fits – enjoyed a “brilliant Christmas” at home with the family.
Kyle regularly attends Alder Hey Children’s Hospital in Liverpool and also receives respite care from Hope House Hospice.
He has to take a cocktail of drugs every day to treat his condition and most days he is unable to walk and is no longer able to eat or drink, resulting in him being tube fed via his abdomen.
Over the years Kyle’s seizures have resulted in him suffering brain damage and significant physical disabilities.
He currently sleeps in a room that is “completely unsuitable” for his needs and his mum is forced to carry him up and down the stairs everyday – which they say is “becoming almost impossible and dangerous”.
The extension would provide Kyle with his own room equipped with an electronic bed, hoists, oxygen supply and monitors.
Money has so far been raised by a ladies’ night organised by the family, as well as donations made by the community and a generous £1,000 boost from developers Redrow.
Mrs Robins added: “We are hoping by this time next year we will have raised enough money.”
In a statement last month, a Flintshire Council spokesman said: “In these circumstances the family are entitled to a non-means tested disabled facilities grant.
“However, the cost of the work required exceeds the grant maximum of £36,000.
“The family has indicated they will seek to raise the outstanding amount so the work can go ahead.”
Anyone wishing to donate can also send a cheque to the Kyle Payne Appeal to 60 Y Berthlog, Trelogan, CH8 9BW.
More information about the Kyle Payne Appeal can be found by visiting its Facebook or Twitter social networking website pages.