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Caia Park mum's anguish as she's told she needs lifesaving op

Published date: 02 January 2014 |
Published by: Nathan Rowden
Read more articles by Nathan Rowden


 

A MOTHER-of-three has told of her shock after learning she may only have a short time to live, just months after her two-year-old son nearly died.

Charlotte Roberts was delighted when her son Blake Roberts, who has a rare chromosome disorder, overcame life-threatening septicaemia in September having twice undergone major surgeries.

Mrs Roberts, 26, who lives on Montgomery Road, Caia Park, with husband Darren and young children Blake, Liam, five and Eva, three, was dealt a cruel blow when she found out she had heart failure which could mean she only has a short time to live.

She said: “I had a meeting with the heart nurse recently and she gave me the prognosis I had heart failure. 

“She said people with this condition do not live longer than five years without a heart transplant, which they won’t put you on the register for until you are 12 months from dying.

“It was destroying and totally devastating.”

Mrs Roberts is a full time carer for Blake, who has a one-in-a-billion disorder called inverted duplication of chromosome 15q25-QTER, which only affects six children worldwide.

Blake’s chromosome disorder means he has sight and hearing problems and struggles to walk or crawl, although he is a tenacious youngster who is full of life.

“I can’t help but wonder what will happen to the kids if anything was to happen to me, especially Blake as I am his carer,” said Mrs Roberts.

Her heart problems started when she was 16 years old and she was diagnosed with a heart virus, Myo Carditis.

She was given the all clear but some of her problems returned when she was pregnant. But they have been managed with regular appointments with the heart nurse.

Now Mrs Roberts says she is on a cocktail of medication to manage her condition, and is going to have to wait to go on the transplant register.

But she was happy the family could spend Christmas together.

She said: “This is one of the first Christmases I had been excited for and it made it so much more special. It makes you really appreciate the time you have with your family.”

Although they do not know what the future will hold, the Roberts family is still raising money to get Blake a sensory garden and have already raised more than £1,300.

Anyone who would like to donate should visit www.just giving.com/ Blake15

For more news from across the region visit newsnorthwales.co.uk

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