New Broughton girl Lily continues fundraising efforts for Huntington's charity

Reporter:

Geraint Jones

A girl donned her walking boots to raise awareness of a rare nerve disorder which has affected her grandfather and also raised a substantial sum for charity.

Lily Griffiths, of Clos Ogwen in New Broughton, completed a 10 mile walk in aid of the Huntington’s Disease Association.

The youngster went from Trevor to Chirk and back again over the aqueduct, raising a total of £1,250 for the charity.

Proud mother Rachel Griffiths said: “She made it over the aqueduct even though she said she wouldn’t because of the height.”

The Bryn Alyn School pupil walked from the Poacher’s Pocket in Chirk along the canal to Chirk Tunnels, before going past Pontcysyllte Aqueduct to the Telford Inn and back.

Huntington’s Disease, also known as HD, is a genetic disorder of the central nervous system that affects around 20 people in Wrexham county and eight in Flintshire.

It is estimated that three to four times that figure are at risk in each county.

HD usually develops in adulthood and affects movement, feelings, thinking, speech and eating, which get progressively worse over 15 to 20 years until the person needs full-time care.

Anyone with a parent who has HD has a 50/50 chance of inheriting the gene which causes the condition.

Lily, a student at Tetsu Nushi Karate Club in Brymbo, was joined by sensei Ian Nash, Dan Challinor from the club, as well as other members.

The youngster has been honing her skills at the club for the past year, reaching the level of blue belt, and she is due to try for her purple belt in two weeks.

The walk is not Lily’s first charity fundraising endeavour, as she raised £2,000 for the Little Princess Trust in 2015 by having her hair cut short.

Clwyd South MP Susan Elan Jones was so touched by Lily’s efforts that she visited the youngster at her family home.

Mrs Griffiths previously told the Leader of her pride at Lily’s fundraising and added that her son Charlie, seven, donated pocket money for his sister’s sponsored hair cut and this time around has collected donations from neighbours.

She said: “My dad has been diagnosed with Huntington’s Disease and it’s not really a well-known disease, so Lily just wanted to make people aware of it and she wanted to do something for her granddad.

“I think it’s nice that the karate club are supporting her as well.

“It’s absolutely lovely. They have given out sponsor forms to everyone who comes to the club. They’re very supportive of her.”

Email:

geraint.jones@nwn.co.uk

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